October 19, 2024 all-day

Farmington, CT, October 19th, 2024.  Free. Rare New England will host their annual “Improving Health Care Experiences in the Rare Disease Community with Information and Support”, and is for patients and families to obtain information about services and resources available to the rare disease community to help obtain an improved life.
2024 Conference Themme: Rare Together – Uniting for Progress
* Their goal is to provide informative, open, and safe conversations within the rare disease community including, but not limited to patients and their families, expert panels, patient advocates, and a few of RNE’s board members who are held closely together by a rare disease.
RNE’s annual conferences are focused on bring information and providing education about rare and complex diseases to all rare disease stakeholders, patients, caregivers, medical professionals, industry, legislators, and more.
* This Annual Conference serves as a platform for fostering meaningful connections, sparking innovative discussions, and exploring strategies to address the unique challenges faced by those affected by rare diseases. Conference Attendees will:

  • Become empowered to collaborate with various stakeholders and advocate for their needs. By providing a platform for their voices to be heard, we aim to foster a sense of empowerment and agency within the community.
  • Have the opportunity to explore a wealth of resources, programs, and initiatives relevant to the care and lives of patients with rare diseases and their caregivers. From support groups to patient assistance programs, attendees will gain valuable insights into the available resources to support their journey.
  • Learn how to thrive and be resilient by leveraging these resources for a more fulfilled and supported lifestyle at home. Through presentations, panels and interactive sessions, attendees will discover practical strategies for overcoming challenges and embracing a resilient mindset.
  • Gain an understanding of how collaborations between clinicians, scientists, and advocacy organizations make a significant impact for the greater good of the rare disease community. By showcasing successful collaborations and innovative initiatives, we aim to inspire attendees to become active participants in driving positive change.
  • Connect with fellow attendees, speakers, and exhibitors throughout the conference and build lasting relationships within the rare disease community. Whether you’re seeking support, mentorship, or collaboration opportunities, the conference offers ample networking opportunities to meet like-minded individuals.

For more information about registration and fees, visit www.rarenewengland.org/rne-annual-conference-1  or contact 508-699-4035 or  Info@rarenewengland.org.

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