Boston College, Boston, MA, April 4th, 2025, with Campus School at Boston College Campus School. Conference for Families and Professionals – Perspectives on Parenting Children with Extensive Support and Medical Needs. SPEAKERS
* Nancy Frates – Nancy’s son was diagnosed with ALS in 2012. Pete was a 27-year-old athlete and the only people she’d ever known with this disease were elderly already. Pete Frates inspired the ALS Ice Bucket Challenge, which quickly became a viral fundraising phenomenon. Pete Frates is now paralyzed and mute—he speaks to the world through eye gazer technology and through his family. They all remain hopeful for progress in treating this terrible disease.
* Dr. Katie Huth: Dr. Huth is a pediatrician in the Complex Care Service Outpatient Program at Boston Children’s Hospital. Dr. Huth is an active member of the American Academy of Cerebral Palsy and Developmental Medicine, the Academic Pediatric Association and the Canadian Paediatric Society within their complex care special interest groups.
Maura Sullivan: Maura Sullivan is Chief Executive Officer of The Arc of Massachusetts. Previously Maura served the The Arc of Massachusetts by leading Government Affairs and serving as the Director of Operation House Call. Her advocacy led to the passage of Nicky’s Law, Police Training in Autism, being instrumental in securing increased funding for the Department of Developmental Services (DDS) budget, the direct support workforce, and MassHealth.
RSVP to https://www.facebook.com/photo?fbid=1104175995042274&set=a.294065242720024 or contact KMH94@bc.edu or 1-800-392-6023
