Here We Go Again
It's hard to get out of beach and pool mode. But summer is almost over and it’s time to embrace another school and work year.
There is always lots of commotion with moving forward to this next stage of the season; IEPS, medical forms, becoming familiar with the new aides for our child, and organizing the other kids’ schedules around our special child’s particular needs.
The good news is that once everyone is settled in, we can enjoy the organization and quiet moments that come when all the planning is finally working.
And then it will be time to make our holiday lists…
Have a great school year!
Pass the National Background Check Bill
The Arc of Massachusetts has asked that everyone share this important message. In part, it reads:
“Please act on this alert for HB4125 An Act to Require National Criminal Background Checks (for Staff who work with individuals served by the Departmental of Developmental Services - DDS)
Right now only Massachusetts criminal background checks are conducted for those working with individuals served by DDS…If someone lives in Rhode Island, New Hampshire or other neighboring state we have no way of knowing if they have a record in that state or in another state from which they recently moved.
Passage of this bill is important to protect a vulnerable population from sexual or other serious abuse…"
To find out more and submit a message to your lawmaker, visit the Arc of Massachusetts National Background Check Bill page.
A Miracle for Justina
The case of Justina Pelletier is the nightmare that any special-needs parent fears.
Justina is the 15-year-old from West Hartford, Connecticut that is being held against her family’s wishes at a Boston hospital since February 2014.
There is way more to the story than can be related in this short blog. However if you visit www.justiceforjustina.com you will see her parents side of the issue and case for bringing her home. A more newsworthy view can be found by just searching Justina’s name in the internet.
No matter how you find information, it is important that as a parent you educate yourself on what a worst case scenario can look like when parents and doctors disagree.
I hope that Justina goes home to her family soon. And I hope this never happens again.
“Mom, where I am I going next?”
For most teens, an answer from a parent may be “to your room to finish your homework", or “stop texting your friends and I’ll tell you.”
However this question came from my special-needs 19-year-son. He wondered what his disability supports will be when he graduates from his out-of-district school.
I don’t know.
The DDS says no even though he was in their system since age 3, supported by diagnostic reports taller and thicker than Manhattan phone books.
The DMH says no, even though those same reports document that his OCD, ADHD, anxiety, and other co-morbid issues must be addressed by a comprehensive mental health support system.
Seems they think that the DDS should take him. Or I should look elsewhere.
And when I explore other disability organizations, they usually won’t accept someone not funded by the DDS or DMH.
No wonder so many people fall through the cracks in our system.
For any state agency legislator that may happen to read this blog, please tell me how these roadblocks are supposed to help the very people you are designated to serve?
My young adult, and many other young adults need your help. Today.
Massachusetts' Disability Events
Making Peace with Autism Author to Speak: September 24, 2014, Danvers. The "Laugh, Love And Learn Series" from the Northeast Arc and EMARC present author Susan Senator.
Ms. Senator is a parent of a young adult with autism, an activist in the Boston area, and author of "Making Peace with Autism", "The Autism Mom’s Survival Guide", and "Dirt – A Story about Gardening, Mothering, and Other Messy Business." Tickets are $10 at the door. RSVP to email@example.com or 781-587- 2223 or visit EMarc.
Parents Have the Power to Make Special Education Work: October 1, 2014, Natick. Free and open to the public. This workshop will feature Judy Canty and Carson Graves, authors of Parents Have the Power to Make Special Education Work: An Insider Guide. RSVP to 508-655-9200 or firstname.lastname@example.org or visit Academy Metrowest.
Mary Poppins - Be Prepared for the Team Meeting: October 10th, 2014, Natick. Christine Riley and Jennie DunKley, experienced advocates, will cover IEP meeting-related topics such as:
• What to bring with you to every Team Meeting, and why
• How to prepare for a Team Meeting
• How to act during the meeting, and how to use what you brought
• How to followup after the meeting (with parents, with district).
• How to write measurable goals.
Fees apply. For more information visit the Special Needs Advocacy Network page or contact email@example.com
The Fragile X Society of Connecticut Conference: October 18th, 2014, Farmington, CT. For families, educators, therapists and providers who care for children and adults with fragile X-associated disorders and autism spectrum disorders. Understanding and Managing Hyperarousal Throughout the Lifespan is this year’ theme. Presenters are Sarah Scharfenaker and Tracy Murnan Stackhouse. Fees apply. For more information contact 860 - 233-1904 or CentralCT@fragilex.org or visit the Fragile X Society of Connecticut Conference Page.
Disability and Community Resources & Craft Fair. October 19th 2014: Dartmouth High School Gym, South Dartmouth, 10 - 4 pm. The 2nd Annual South Eastern MA Community Resources & Craft Fair will feature many area disability and community resources for your child or student. There will also be raffles, crafts, specialty art vendors and more. For more information visit The Dartmouth SEPAC page or contact firstname.lastname@example.org or 508-207-3015
Find more Massachusetts Recreation on our Recreation Page
Inclusive Camps & Activities in Massachusetts for 2014: From Ayer to Boston to Plymouth, Sturbridge, Worcester and more, camps and programs to help your special child stay busy, engaged and included by enjoying movies, sports, recreation, outings and social activities. See the Camp Page for listings.
Boston Museum of Science Disability Prototype Testers: The Boston Museum of Science is seeking visitors with all disabilities to test new exhibit prototypes, explore the museum, and give feedback to help improve their accessibility.
Testing includes free admission to exhibit halls for the day and free parking in the Museum's garage. To participate and give the Museum feedback fill out their Boston Museum of Science on line form or contact 617-589-4438 or email@example.com
Adaptive Recreation Across Massachusetts: With the DCR’s Universal Access Program:
Viewing deck at the Summit House atop Mount Holyoke at Skinner State Park is now be wheelchair accessible with the ramp opening scheduled for mid-June, for a spectacular view of the Connecticut River Valley.
Mount Tom State Reservation has a new accessible trail leading to a viewing bridge on Lake Bray.
Mt. Greylock State Reservation has several new accessible interpretive and signage exhibits open.
Scusset Beach has a new accessible boardwalk over the dunes and two new beach wheelchairs that roll into the water
More information can be found on the on the State of Massachusetts DCR Universal Access Program Page.
Sensory Friendly Films are now on the Recreation Page.
Free Disability Parent Workshops in Massachusetts - From the Federation For Children with Special Needs:
Effective Communication with the IEP
Suspensions & Discipline in Special Education
To register, contact The Federation For Children With Special Needs in Boston, Massachusetts, or firstname.lastname@example.org, or call 800-331-0688.
SPED Child and Teen is not responsible for any listed events' contents, or changes in content, times, dates, fees, or speakers. Please check with event host to verify details.
SPED Child and Teen does not endorse any event, listing or product on this site, and all content is for information purposes only.
Teens and Young Adults
Building a Home Conference: September 27, 2014, DCU Center, Worcester. The Massachusetts Developmental Disabilities Conference provides planning, tools and more to assist in helping a loved one with a disability live, work, and enjoy life in their community.
• Shared Living, Section 8, Affordable Housing
• SSI, SSDI, Employment, Person Centered Planning
• DDS, MassHealth, MassRehab Benefits, Agencies
• Twenty-Two at Twenty, a Nontraditional Transition Story
Fees apply. Early Bird Registration before August 31. Limited respite funds and scholarships available. For more information visit www.mfofc.org or call 508-824-6946
ImprovBoston Disability Scholarship: The No Limits Media and ImprovBoston scholarship is to help a person with disabilities learn improvisational comedy. People with disabilities will perform alongside improvisers of every type. Eligibility requirements must be met:
• You must be at least eighteen 18 years old
• You must be able to engage productively in collaboration with others
• Only complete applications will be considered.
For more information contact email@example.com or visit ImproveBoston Disability Scholarship page.
CBT for Young Adults with Aspergers: September 29 – November 4, 2014, Watertown. The Aspergers Association of New England’s Cognitive Behavioral Therapy (CBT) Group for ages 18 – 30 focuses on helping young adults with Asperger Syndrome (AS) and related profiles continue to develop skills to manage anxiety and depression. No drop-ins, fees apply Participants must have a current AANE membership. For more information contact firstname.lastname@example.org or 617-393-3824 x44
Shared Living & Adult Family Care Conference: September 30, 2014, 9 - 3 p.m., Worcester. Keynote speaker will be Dan Habib, documentary film maker of "Including Samuel".
• Commissioners Round Table Panel Discussion
• Guardianship/Special Needs Planning
• Positive Behavioral Supports
• My Way with Dignity, Person Centered Planning
• Caring for Yourself – Compassion Fatigue
• Supported Decision Making, Shared Living vs Adult (Foster) Family Care
Fees apply. For more information visit The Shared Living Conference Page.
Transitions to Work, for ages 18 - 35 with a Disability: September 2014, Dedham, MA. Employer-based program focused on creating new employment opportunities for young adults with disabilities.
• Students must have completed high school, can travel independently and can work up to 20 hours per week.
• Internships in Customer Service, Culinary Arts and Housekeeping.
For more information contact Mwenzel@jvs-boston.org or 617-399-3241, or CScibelli@jvs-boston.org or 617.399.3220. Information can also be found at the Jewish Vocation Services Website www.jvs-boston.org or the Transitions to Work Program
"Housing 101" from Autism Housing Pathways: October 6, Easthampton, October 7, Sturbridge. This free presentation introduces families to the range of public funds available to pay for housing and supportive services, including for those without DDS supports, how some may be combined with private funds to create housing, and a checklist of things to do when your family member turns 18.
• Oct. 6, 2014, Community Resources for People with Autism, Easthampton. RSVP to JanDoody@theassociationinc.org
• Oct. 7, 2014, Seven Hills Family Services, Sturbridge . RSVP to 508-796-1952.
For more information about Housing 101 contact email@example.com
Transition Matters Conference: October 29th, Marlborough. This Institute for Community Inclusion conference will offer networking with school professionals, adult service providers, and families of people with disabilities. Dr. Mary Morningstar from the University of Kansas will the keynote speaker, and will also lead a breakout session about working with families from culturally and linguistically diverse backgrounds.
Other Topics include:
• Results-oriented transition assessment
• Learning from common district mistakes
• Supporting youth in the child welfare and juvenile justice systems
• Effective practices that support career readiness
To register visit the Youth Movies Conference Page.
Special Needs College & Career Access Project (CCAP): Fall 2014, Danvers. A collaborative effort of North Shore Community College and Northeast Arc. CCAP is designed to prepare ages 18 to 26 with developmental, intellectual or learning disabilities with educational and hands-on practical experience in Horticulture, Canine and Feline Care and Arts/Entrepreneurship. Scholarships are available. For more information contact 978 624-3062 or firstname.lastname@example.org at 978-777-9135
"Transition Talks" Parent Groups: October 9th, 2014, Seven Hills Family Support Center, Sturbridge, 6 p.m. Free and open to the public. Transition Specialist Robin Foley will discuss the special needs journey and transition for ages 14-22. Topics include student visions, post secondary opportunities, etc. For more information call 508-796-1954. For the Fitchburg Seven Hills Family Support Center call 978-632-4322
Planning A Life Making the Most Out of High School: TBA in Boston., Springfield and Worcester. For parents of students with disabilities aged 14 to 21. Topics cover: Creating a VISION, Person Centered Planning, Portfolio Development, Transition Requirements of IDEA 2004, Assessments, Transition goals into the IEP, Employment & Job Development, Work Supports.
For more information contact email@example.com 617.236.7210 - ext 336 or registration info at 800-331-0688 or firstname.lastname@example.org or visit www.fcsn.org
NEXT STEP: College Success & Independent Living program: May 10 2014, Boston. For students, grades 9-12, who present with a social language deficit, Aspergers Syndrome, NLF, or related learning differences, and are serious about attending college after high school.
NEXT STEP gives students a chance to hone executive functioning, problem solving, and self-advocacy skills that are necessary for living with other students on a college campus. For more information, contact email@example.com or 617-278-4119
Easter Seals Massachusetts - Youth Leadership Network: Boston, Worcester, New Bedford, & Springfield. For youth and young adults between the ages of 14 to 26 disabilities. The Network is a place for these individuals to increase their independence by learning how to develop a personal leadership plan, along with working to spread disability awareness and help decrease bullying through the Don’t disABILITY campaign. It is also an opportunity to build friendships and receive mentorship from others in the disability community. For more information contact firstname.lastname@example.org 617-226-2855
"Advocates in Motion" Social Program: This Massachusetts Down Syndrome Congress program provides fun, inclusive, interactive events and fosters social relationships for teens and young adults ages 13-22. AIM participants develop leadership and self advoacy skills, form meaningful relationships with peers and build their self-confidence in an encouraging environment. AIM members meet one Sunday afternoon per month from September to May. There are a variety of social, recreational and volunteer activities throughout the year. Contact email@example.com or 781.221.0224 or visit www.mdsc.org .