The annual summer-camp Parent Panic is now in full swing.
Besides facing the difficult problem of finding the proper program to accommodate your child's disability, there is also calculating in family vacations, parent work schedules, drop-off/pickup times and the expenses of keeping kids safe and involved over a long season.
To keep costs reasonable, here are a few tips to keep in mind:
Always ask about camp scholarships. Check with your desired camp, your local Lions Club, Rotary Club, local community groups and city and state disability programs. Ask about discounts for referring a friend. Offer a skill or service for a discount or even free tuition. Can you teach swimming, CPR, arts and crafts, web design, a sport or obtain equipment and supplies for your chosen program? Attend in late summer. Many families take vacations around this time, and camps have a harder time filling their bunks. Have a fund-raising project such as a garage sale.
I hope these tips help you chip away at some of the costs and get your child into the program of your choice. Sharon Marie
May Is Children's Mental Health Month
Many of our children have emotional and mental challenges along with their physical disabilities. Children's Mental Health Month in Massachusetts will showcase many family support services that are participating in a month- long series of events to promote community awareness and spreading the word about and helping the mentally impaired and their families.
The Wayside's Parent Partnership Program is just one of many mental health organizations in Massachusetts hosting events in cities and towns such as Arlington, Billerica, Brighton Framingham, Lexington and Watertown.
Their community workshops include themes such as a Forum for Children's Health Campaign, Legislative Breakfasts, Helping Parents Learning Parenting, There's No Such Thing As A Bad Kid and much more.The month long campaign will end with a May 31st NamiWalks at Artesani Park in Brighton. Please visit the Wayside at www.waysidepp.org for details on many more events. Sharon Marie
Don't Let Him Do It
Do not let Deval Patrick cut $78 million from the DMR's budget. And unless a whole lot of us a make a whole lot of noise, our Governor and his administration will make this next chop to the DMR's budget on July 1st, which is the beginning of fiscal year 2010. And, according to the ARC of Central Massachusetts, the State of Massachusetts can place Federal Medicaid dollars into the General Fund. That menas Medicaid re-imbursement increases can be used for other areas of the state budget instead of the family supports they are intended for.
Well it's our money too. And we have the right to tell our local legislators how we want our hard-earned Massachusetts tax payer dollars spent.
Remember, its our money too. Sharon Marie The DMH Layoff Outrage The elimination of 100 case worker positions from the Massachusetts Department of Mental health was the state kicking a dog that was already down. A callous and heartbreaking move that decimates a department hard hit by previous cuts.
I want the state to know that there are faces and families behind the numbers they throw around. That people are hurting and don't know where to turn. That dedicated case workers are once again left stretching themselves farther then ever before to help those who are unable to help themselves.
If these dire economic times continue, there may be more cuts still to come for the DMH. I implore Governor Patrick and his administration to stop this outrage, this abomination to the well being of our mentally challenged.
Every one of us needs to call our state legislators right away. You can find their contact information at www.wheredoivotema.com. Tell them: No more cuts. No more layoffs. No more. Sharon Marie
Speaking Loud and Clear Recently my town's school committee held an emergency meeting to discuss the future of certain aspects of the SPED programs.
It was heartening to not only have so many parents pack the room
and diplomatically voice their strong opinions, but also for the town's
leaders to be listening and agreeing.
And that is what Parent Power is truly all about. Standing up. Being heard.
Taking action and advocating for the child that cannot.
At the end of the night, one parent stated "The People Have Spoken."
And so they have. And so they will. Sharon Marie
Click the Massachusetts Camp 2009 link above for the latest list. Submit camp information toinfo@spedchildmass.com.
Events - All Abilities
Universal Access Recreation Program-Summertime 2009 Schedule. The Special Needs Community can enjoy accessible programs such as Adaptive Bikes for Big People, Sailing on the Charles River, Kayaking, Canoeing, Cycling, Rowing, Accessible Hiking,Fishing, and Horseback Riding all summer and in many locations across the state. Some programs are free and open to the public while others have small fees or restricted scholarships. Seats are limited and most programs require pre-registration. For more information, contact the Universal Access Program 413-545-5353, or visit www.mass.gov/dcr/universal_access
Understanding Aspergers Syndrome: Interventions and Strategies for Parents. Monday, July 13, 2009,AANE's Watertown Office. This introductory course is for families of newly diagnosed children and has details and real-life examples of some of the most common characteristics of Aspergers Syndrome. For more info visit www.aane.org/upcoming_events/pdfs/ParentWorkshops.pdf or contact Stephanie Loo at 617-393-3824 x 307 or stephanie.loo@aane.org
Family Support Fun Events: Hosted by Y.O.U. Inc. Gardner Family Center, Gardner, MA. Thursdays, from July 9th through August 13th. Meet other families with children who have mental, behavioral or emotional health care needs while enjoying a picnic, games and socializing. For more information or financial assiatance, contact Kathy Hamelin, 978-632-2321, ext 38 or visit www.youinc.org
The Arc of Massachusetts now has two Facebook pages: www.facebook.com/group.php?gid+61422009792 for sharing your personal stories. www.facebook.com/group.php?gid=59186921773 to Save Family Support Services in Massachusetts. You must be signed into Facebook to join. For more information, contact Tracey Reilly Ingersoll, Riverside Community Care, 781-246-2003, ext. 6521.
Lend Fellowship Opportunity: The LEND Program in Waltham, Massachusetts is currently recruiting qualified family members and disabled adults with proven leadership experience in special needs. Participating in the LEND program is an intensive immersion program designed to enhance the knowledge and skills of future leaders and clinicians. Accepted fellowship students will receive a stipend toward their education or, in certain situations, to supplement their time away from work. For more details and an application, visit: http://www.umassmed.edu/shriver/Education/lend/ and/or contact 781.642.0256, Carol.Curtin@umassmed.edu access/ABILITY Exhibit:Boston Childrens' Museum. Now through August, 2009.A interactive disability-awareness exhibit where visitors may learn phrases in American Sign Language, type their names in Braille, try a hand-pedal bike or take part in a multi-sensory City Walk.www.bostonchildrensmuseum.org/exhibits/special.html
The 2nd Annual Roger A. Bauman Parent Lecture Series 2009: Times: Wednesday Evenings, 6:30 p.m. to 8:30 p.m., Charles River Arc, Needham, MA. For more information visit www.crarc.org or call: 781-444-4347. To register contact LADDERS, 781-860-1726 or jobrien20@partners.org. Fee $5 per person at the door. Schedule details: www.ladders.org.
Therapeutic Martial Arts for ADD, Aspergers, and Other Related Non-Verbal Developmental Disabilities. Summit Academy School, 800-442-5753, or www.summitacademies.com.
Events - Teens and Young Adults
Assistive Technology Workshop: It’s Already in There: July 21st, 9:30 a.m. to 11:30 a.m., Easter Seals, Worcester. Learn how to change the settings on your PC to meet some vision, hearing, learning and physical accessneeds. Learn more about the built-in accessibility tools in your PC’s operating system and productivity applications for home, work and/or school. Fee $40.00. For registration please complete the Summer 2009 AT Workshop registration or contact 800 244-2756 ext. 448, or email: jmcauslin@eastersealsma.org.
Healthy Understanding Girls (HUG).A therapeutic group for girls 10-14 in Framingham and Marlborough. Mondays and Tuesday, 2 p.m.-4 p.m.,6/29--8/18. Goal is to improve self esteem, learn positive social skills, and transition to preteens. Group sizes limited. Presented by the South Middlesex Opportunity Council. Contact Nicki Logan, 508-620-2414 X166.