Burlington, VT, September 23rd, 2017. Rare New England and the University of Vermont Children’s Hospital will host “Improving Health Care Experiences in the Rare Disease Community with Information and Support”, and is for patients and families to obtain information about services and resources available to the rare disease community to help obtain an improved life.
- How to Navigate the Insurance World When You Have a Rare Disease – Betty Morse Health Services Training & Technical Assistance Specialist Children with Special Health Needs (CSHN) Vermont Department of Health.
- Navigating the School System to Get What you Need” – Leah Burke, MD, Director,The University of Vermont Medical Center, Clinical Genetics Program.
- Vermont Family Network: Family-to-Family Support, Information and Connections – Vermont Family Network.
- Promoting Better Life Quality with Helpful Resources – Angel Flights, TBA.
- Genetic and Genomic Testing 101- Ben Solomon, MD, FACMG, Managing Director, GeneDx.
- Managing a complex disease in a complex health care system – Mark Korson, MD, Rare New England.
- Patient story, Krystye Bettney (Sponsored by Sanofi Genzyme).
- Patient- and Family-Centered Care: Improving Care through Mutually Beneficial Partnerships – Amy Cohen, PhD, BCBA, CLSSGB, PMP Patient- and Family-Centered Care Program Manager, The University of Vermont Medical Center.
Fees apply, registration is required to http://www.rarenewengland.org/RNE-UVM-Conference-2017.html or contact 508-699-4035 Info@rarenewengland.org