When:
March 23, 2024 all-day
2024-03-23T00:00:00-04:00
2024-03-24T00:00:00-04:00

AIM Program at the Massachusetts Down Syndrome CongressWorcester, MA, March 23rd, 2024. Celebrate MDSC’s 40th Anniversary UnstoppABLE Conference, where the MDSC will mark the organization’s  and community’s four decades of Building Brighter Tomorrows,
* For self advocates with Down syndrome, as well as parents and caretakers, grandparents and siblings, health care professionals, educators and others.
* Hear the latest research findings and timely information from regional and national experts on the full range of topics as it relates to Down syndrome.
* This 40th Anniversary Conference will put a particular focus on the state of research in Down syndrome, including innovative clinical trials, studies and initiatives across the country which promise to improve the lives of people with Down syndrome.
* Throughout the day, you will have access to dozens of expert-led sessions, each providing invaluable information and resources for all attendees — families with young children through adulthood, educators, medical professionals, siblings, and, of course, self advocates.
information from national and local experts on a range of topics related to Down syndrome.

Fees apply, registration is required to the Massachusetts Down Syndrome Congress  https://mdscconference.org/   or contact 781-221-0024.

2024 CONFERENCE Workshop Topics include:

  • New Parents: Sharing Our Stories
  • Inclusive Technologies to Support Learners with Down Syndrome
  • Navigating a Dual Diagnosis of Down Syndrome and Autism
  • 40 Years of Change in the Health of Adults with Down Syndrome
  • Planning for Two Generations: Special Needs Financial Planning
  • SELF-ADVOCATE WORKSHOP: People in My Life: Understanding Relationships
    Terri Couwenhoven, MS, AASECT
  • BROTHERS & SISTERS WORKSHOP: Getting to Know Our Unstoppable Siblings
  • Research in Early Development in Down Syndrome
  • Supporting Positive Behavior in Children and Teens with Down Syndrome
  • Research 101 for Everyone: An Overview of Down Syndrome Research & How Families Can Get Involved
  • Changing the Scripts: Supporting Healthy Sexuality in People with Down Syndrome
  • Aging and Down Syndrome: Addressing Current and Future Challenges of Aging, and What to Do About It
  • Grandparents: Sharing and Caring
  • Keeping Children and Adolescents with Down Syndrome Healthy: All the Medical Updates that Parents Need to Know
  • Understanding the New IEP Form
  • At a Critical Crossroads: Down Syndrome & Alzheimer’s Disease Research
  • Tweens to Teens to Transition: Resources and Strategies for Navigating the Path to Adulthood
  • Employment Among Adults with Down Syndrome: What We Know from National Core Indicators (NCI) Data
  • SELF-ADVOCATE WORKSHOP: Express Yourself: Be Unstoppably YOU!
  • PricewaterhouseCoopers (PwC) Abilities & Allies Team
  • BROTHERS & SISTERS WORKSHOP: Planning for Our Unstoppable Future

2024 Conference Speakers Include::

  • Sarah Cullen, Family Support Director, Massachusetts Down Syndrome Congress
  • Emily Jean Davidson, MD, MPH Attending Physician Boston Children’s Hospital Down Syndrome Program and Complex Care Service
  • Angela Lombardo, MSW, Senior Program Coordinator, Boston Children’s Hospital Down Syndrome Program
  • Tatiana Salinas, Bilingual (Spanish) Family Support Specialist, Massachusetts Down Syndrome Congress
  • Karen Janowski, MS Ed, OTL, President, EdTech Solutions, Inc.
  • Jeanne Doherty, President, Down Syndrome-Autism Connection; Charlotte Gray, Executive Director, Down Syndrome-Autism Connection
  • Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center, Faculty, Family Medicine Residency, Advocate Lutheran General Hospital
  • Alexandria Nadworny, CFP(r), CTFA, Vice President, Wealth Advisor at Sequoia Financial Group; John Nadworny, CFP(R) Principal & Senior Strategic Advisor at Sequoia Financial Group
  • Nicole Baumer, MD, MEd, Director, Boston Children’s Hospital Down Syndrome Program, Neurodevelopmental Disabilities, Harvard Medical School
  • Jana M. Iverson, PhD, Christopher A. Moore Professor of Pediatric Rehabilitation, Department of Physical Therapy, Boston University
  • Carol Wilkinson, MD PhD, Developmental Behavioral Pediatrician, Boston Children’s Hospital
  • David Stein, PsyD, Director, New England Neurodevelopment, LLC,
  • Hampus Hillerstrom, President & CEO, LuMind IDSC Foundation; Eric Rubenstein, PhD, Assistant Professor Epidemiology, Boston University
  • Terri Couwenhoven, MS, AASECT Certified Sex Educator
  • Julie A. Moran, DO, Attending Physician, Tewksbury Hospital, Physician Consultant, Massachusetts Department of Developmental Services, Clinical Instructor of Medicine, Harvard Medical School; National Down Syndrome Society (NDSS) Staff
  • Betsy Pelz, MA, MDSC Board Member; MDSC Education Task Force Member, Retired English Coordinator, Ralph C. Mahar Regional School, Orange, Massachusetts, Grandmother of Milo
  • Kristin Abendroth, Co-Founder & Director of Member Experience, Inclusive Fitness
  •  Greg Austin, Co-Founder & President, Inclusive Fitness;
  • Emily Jean Davidson, MD, MPH Attending Physician Boston Children’s Hospital Down Syndrome Program and Complex Care Service
  • Brian Skotko, MD, MPP, Emma Campbell Endowed Chair on Down Syndrome and Director of the Down Syndrome Program, Massachusetts General Hospital; Associate Professor, Harvard Medical School
  • Pat Cameron, Director, Family TIES, Federation for Children with Special Needs;
  • Leslie Leslie, Project Director, MassPAC
  • Brian Chicoine, MD, Medical Director, Advocate Medical Group Adult Down Syndrome Center, Faculty, Family Medicine Residency, Advocate Lutheran General Hospital;
  • Emily Jean Davidson, MD, MPH Attending Physician Boston Children’s Hospital Down Syndrome Program and Complex Care Service;
  • Valerie Bradley, President Emerita, Human Services Research Institute; National Down Syndrome Society (NDSS) Staff
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