Family Mom and daughter hug Rare Disease New England Advocacy DayVirtual Support Groups, June 9th and the first Tuesday of each month, with Rare New England. Rare New England has created a new program, “Virtual Patient & Caregiver Support Groups”, to provide opportunities for adult patients and for caregivers to come together and share their experiences with others facing similar challenges.
* In this atmosphere, attendees learn from each other and feel supported by people who understand, thus leaving each meeting with feelings of hope.
* These hour-long sessions are moderated by a trained member of RNE who follows a guideline prepared specifically for this program.
* There are two meetings held per month, one focused on bringing together caregivers and another focused on adult patients.
* At each event, a moderator allows those in the waiting room who have requested to join into the meeting. The host welcomes attendees and begins by explaining the group rules and format for the next hour.
* Attendees are free to start sharing from their own needs or topics will be suggested by the host to get the conversation flowing. On occasion there might be a guest speaker to share on an appropriate topic in consideration for the group.
* Attendees are encouraged to use their first names but there is an understanding that some might feel the need to attend anonymously and that’s ok.
To register or for more information visit https://docs.google.com/forms/d/e/1FAIpQLSccDmMe1rdONntP_rM_VgLkXLjxhqnuF_E15iit7ZFKKGsTwg/viewform or contact Rare New England, INC, 508-699-4035 Info@rarenewengland.org.  

Share this event


Join Our Bi-Weekly Newsletter