Massachusetts State House, House Members Lodge, Boston, February 6th, 2020. Rare Diseases, Unmet Needs and Challenges – a Spotlight on Cardiac Amyloidosis is this year’s theme. Learn more about rare diseases and their impact upon families lives, and Bill H2468 “An Act to Create a Rare Disease Advisory Council in Massachusetts.”
* Once created, this council will give rare disease patients, families, caregivers, providers, and other stakeholders an opportunity to make formal proposals to the state on how to improve public policy for the community.
* Also hear about Cardiac Amyloidosis, and how fellow advocates are working together to effect change across Massachusetts.
To register or for more information visit https://docs.google.com/forms/d/e/1FAIpQLSccDmMe1rdONntP_rM_VgLkXLjxhqnuF_E15iit7ZFKKGsTwg/viewform or contact Rare New England, INC, 508-699-4035 Info@rarenewengland.org.
