Farmington, CT, October 19th, 2024. Free. Rare New England will host their annual “Improving Health Care Experiences in the Rare Disease Community with Information and Support”, and is for patients and families to obtain information about services and resources available to the rare disease community to help obtain an improved life.
2024 Conference – More info TBA in Summer 2024.
* Their goal is to provide informative, open, and safe conversations within the rare disease community including, but not limited to patients and their families, expert panels, patient advocates, and a few of RNE’s board members who are held closely together by a rare disease.
RNE’s annual conferences are focused on bring information and providing education about rare and complex diseases to all rare disease stakeholders, patients, caregivers, medical professionals, industry, legislators, and more.
For more information about registration and fees, visit www.rarenewengland.org/rne-annual-conference-1 or contact 508-699-4035 or Info@rarenewengland.org.
2023 Conference Theme – Power of Community Information.
.The program included:
- Rare Disease Education
- Resources for Patients and Families
- Inspirational Stories
- Medical, Community, and Resource Panels
- Rare Connections Support Group Meeting Room
- Child Watch Room & More
